Developing and delivering a deliberative approach to public engagement and participation on data usage in health and care in Wales

Underpinning our work around data is the priority we place on discussion with the public about how and why we use data about them for different purposes. This is a core principle of the Statement of Strategic Intent. The need for good public engagement around data sharing has also been emphasised in the recent report on the use of health data for research, Better, broader, safer: using health data for research and analysis. We know this is a key element of building public trust and demonstrating that the organisations who use health and social care data are trustworthy.

To support this engagement we are seeking an experienced and expert supplier to work with Social Care Wales and their partners in developing and delivering a deliberative approach to engaging with the people of Wales about the use of health and social care data.

Aims and objectives

The aim of this project is to launch our public engagement work around the sharing of health and social care data to support direct care, analysis for service improvement, and research. This work will help us identify how the public views the balance between privacy and using health and social care data for different purposes. It will allow us to identify what we can do to demonstrate trustworthiness.

We have included a discovery phase in this project because we recognise the need for expert help to define a clear scope, purpose and approach for our deliberative engagement work.

We will use the outputs and learning to support Welsh Government’s Data Promise project and inform the development of further ‘data policy’.

Outputs

We require:

• a discovery report, setting out the options for the engagement approach
• a detailed report on the findings and recommendations from the engagement
• an executive summary of up to 10 pages
• a repository of the engagement design documentation, materials and outputs to maximise the transparency of the process.